Our President and Founder (Rick Smith) will be speaking on a panel at a conference being held at the United Nations in NYC on World Down Syndrome Day (3/21.) During his talk, A Little Bit of Hope Can Go a Long Way – Bringing Hope and Support to Couples Receiving Pre-natal Diagnosis of Down Syndrome, Rick will share how Hope Story is working to connect every OB-GYN in America to …
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Jeremy’s Story: A 37 Year Old with Down Syndrome Who Loves to Camp
In this blog post we share Jeremy’s story; a 37 year old man with Down syndrome who loves to camp!
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Piper’s Story: A Six Year Old That Likes to Play Baseball
Click here to sign up to receive updates from Hope Story. Are you a parent of a child born with Down syndrome, we’d like to hear your story. Click here to share your story! Your Child’s First Name Piper Your Child’s Age 6 Your State Mississippi Does Your Child Have Siblings? Yes. One older brother named, Kelton – age 9 Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? I did …
Ivy’s Story: A Six Month Old Who is Overcoming Feeding Concerns
In this blog post we share the story of Ivy. A six month old girl with Down syndrome who is working hard to overcome some feeding concerns.
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Meet Coldon: A Triplet with Down Syndrome
Are you a parent of a child born with Down syndrome, we’d like to hear your story. Click here to share your story! Click here to sign up to receive updates from Hope Story. Your Child’s First Name Coldon Your Child’s Age 12 months Do You Have a Website / Blog? Yes What is Your Website www.coldonskrewe.com Your State Louisiana Does Your Child Have Siblings? Yes. Coldon is a triplet and …
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Killian’s Story: How a Cystic Hygroma Led to a Prenatal Down Syndrome Diagnosis
Are you a parent of a child born with Down syndrome, and interested in Hope Story sharing your story? Click here to learn more! Your Child’s First Name Killian Your Child’s Age 2 Your State Pennsylvania Does Your Child Have Siblings? Killian has an older brother, Kayson. He is Killian’s biggest fan and a wonderful helper and teacher. Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? We had …
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2018 Year in Review
What an exciting year 2018 has been for Hope Story! A year ago, we had no logo, no website, no Board of Directors. In fact, we weren’t even an official organization. What a difference a year can make. Today Hope Story is a recognized 501(c)(3) non-profit public charity, and well on our way of providing hope to families who whose child has just received a Down syndrome diagnosis. We were …
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Our Second Hope Gathering: GiGi’s Playhouse NYC
We recently had the opportunity to host our second Hope Gathering at GiGi’s Playhouse NYC! (Our first Hope Gathering was at the Denver Zoo in October.) Our Hope Gatherings are an opportunity for people with Down syndrome, and their families, to connect with other families in their local community, learn about local Down syndrome organization(s) in their community, and receive information about how they can use their unique story to be a source …
Meet Lainey: A Two Year Old With Down Syndrome…Who Can Impersonate Chewbacca!
Are you a parent of a child born with Down syndrome, and interested in Hope Story sharing your story? Click here to learn more! Your Child’s First Name Lainey Your Child’s Age 2 Your State South Carolina Does Your Child Have Siblings? Kasey (girl) age 7 Bayleigh age 5 Baby brother or sister coming in February! Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? Post How Was The …
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A Day of Hope at the Denver Zoo: Our First Hope Gathering!
One of Hope Story’s goals is to help connect parents to other parents (and have some fun in the process!) One of the ways we hope to accomplish this is by having Hope Gatherings across the United States. What is a Hope Gathering? A Hope Gathering is an opportunity for people with Down syndrome, and their families, to connect with other families in their local community, receive information about their …